Craniocervical instability (CCI) occurs when the craniocervical junction at the base of the brainstem becomes 'shaky'. It affects around one in 15 patients with Ehlers-Danlos Syndrome (EDS), which ...

A bed-ridden mother who was given just weeks to live is finally able to walk again after a life-saving operation stopped her spine collapsing. Samantha Smith was told she would not make it past ...

A successful businesswoman is terrified after being diagnosed with a rare genetic condition that means she could be ‘internally decapitated’ at any time. Mum-of-two Karen Scott was diagnosed with ...

Nicola Scott says that her condition has made her feel as if her neck "is a paper straw and (her) head is a bowling ball" A TERRIFIED mum has been diagnosed with a rare genetic condition that means ...

A British mother-of-two says she has three months to raise £150,00 for pay for life-saving surgery only on offer in the United States. Jessica Kill, 38, from Birmingham was diagnosed with ...

A Queensland woman whose skull is ‘slipping from her neck’ faces an anxious wait to see if doctors can perform life changing surgery to fix her head in place. Kirstin Maltby, 32, has been diagnosed ...

What started as a routine treatment for chronic migraines left 26-year-old Ty Jenkins with an unexpected side effect when her neck started to visibly curve outward. Just days after a routine Botox ...

A woman whose neck was so weak her skull was crushing her spine can walk again after having life changing surgery. Erin Meegan has been bedridden and forced to spend more than 20 hours a day lying ...

A MUM who thought her symptoms after a car crash were due to whiplash has since found out she could be “internally decapitated” at any moment. Louise Turner, 36, says she fears for her life every day ...

A brave mum risks being ‘internally decapitated’ unless she can raise £100,000 for life-saving surgery. Samantha Smith’s spinal cord is being crushed by the weight of her own skull. And she has been ...