My Child's Rare Journey: Living with Nager Syndrome & Her Fight to Thrive
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My Child's Rare Journey: Living with Nager Syndrome & Her Fight to Thrive
Welcome to Lauren's Light. In this video, we openly share our journey living with Nager Syndrome, a profoundly rare genetic disorder that affects craniofacial and limb development. Often known technically as Acrofacial Dysostosis, this condition presents unique challenges, but it's also a story of incredible resilience. When Lauren was born, we ...
270 views2 months ago
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